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Home » Clinical Trials » Patient Resources

Patient Resources

Non-Profits & Support Groups

C. diff. Foundation

The C. diff. Foundation raises awareness of Clostridioides difficile infection through advocacy and education in prevention, treatments, and environmental safety worldwide. The information is targeted and tailored to healthcare professionals, communities, healthcare centers, patients, families and offers continued support toll-free: 1-844-FOR-CDIF (1-844-367-2343).

The Peggy Lillis Memorial Foundation

With 300 Americans dying every day from this preventable disease, The Peggy Lillis Memorial Foundation is building a movement of people across the country to raise awareness and advocate for proven healthcare and policy solutions. The Foundation was created in memory of Peggy Lillis, whose life was claimed by C. difficile infection in 2010, in the hopes that her story, broader education about C. diff, and strong advocacy would save lives from this devastating infection.

C. diff. Survivors Alliance Network

The C. diff. Survivors Alliance Network, an affiliate of the C. diff. Foundation, is dedicated for providing healing support for individuals coping with both physical and mental pain, the complex treatments, psychosocial losses and alterations, and the excruciating grief with complex emotions that accompany the loss of a loved one.

The Power of Poop

The Power of Poop is a patient information resource dedicated to promoting safe accessible Fecal Microbiota Transplant (FMT) and to raising awareness of the role of the human microbiome in digestive illness.

Clostridium difficile Support Group – Cdiffdiscuss.org

The Cdiffdiscuss.org bulletin board is a long-standing and popular site where people – current patients, survivors, and family members – talk specifically about their experiences with C. diff. This is a moderator-run site.

U.S. Government

Center for Disease Control and Prevention (CDC)

Home page for consumers, clinicians, facilities and state health departments on Clostridium difficile.
FAQs About Clostridium difficile (PDF 177 KB)

ClinicalTrials.gov

ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

National Institutes of Health (NIH)

NIH site provides information on diagnosis, prevention, screening, alternative therapies, links to patient resources and more on C. diff.

Other

Everything C. difficile

Everything C. difficile is designed to be a resource for both practitioners and patients covering C. difficile core topics, recent manuscripts and conferences. Includes practical up to date information about C. difficile infection for clinicians and patients. The patient section is geared to patients and explained in clear and understandable terms. The provider section provides evidenced based information for the practicing clinician. The goal of this site is to provide education through short videos with relevant clinical information for educational purposes.

Power of The Microbiome

Sponsored by Ferring Pharmaceuticals, this interactive site is designed to educate audiences of all backgrounds about the connection between the human gut microbiome and recurrent C. difficile infection. The site includes an in-depth look at the microbiome, provides resources and tools, and an interactive educational lecture series.

Microbiota Restoration CE

www.microbiotarestorationce.com is a digital destination providing the latest data for busy clinicians treating Clostridioides difficile infection. The site offers:

  • Video- and text-based expert commentaries (approved for AMA PRA Category 1 Credit™)
  • Practical resources
  • A look at the role of the gut microbiota
  • Microbiota restoration as an approach to reduce recurrent disease
  • Screening and safety guidance for fecal transplantation

www.microbiotarestorationce.com is supported by an educational grant from Ferring Pharmaceuticals, Inc.

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